Pediatric Pulmonary Hypertension
UCSF Pediatric Pulmonary Hypertension wants to send our kids to camp!
Pediatric pulmonary hypertension (PH) is a rare, chronic, and life-threatening disease. Symptoms of shortness of breath and heart failure make it difficult for patients to keep up with their peers. Treatment may include oxygen or medication continuously delivered through a subcutaneous pump. There is no cure for PH, but treatment options continue to evolve and improve. UCSF is one of five Pediatric Comprehensive Care Centers for Pulmonary Hypertension in the United States. We are bringing cutting-edge treatments and compassionate care to our patients but we would like to give them more and WE NEED YOUR HELP!
We are raising funds in order to send our kids to a place where they can feel like any other kid and just be themselves. The Painted Turtle is a medically safe environment where children with chronic illness can know the simple, yet profound experience of camp. Kids will have the opportunity to experience the magic of the campfire, feel the rush of catching their first fish, or maybe the excitement of their first archery bulls eye. The Painted Turtle seeks to reach beyond illness and to inspire children with life threatening diseases to become their greatest selves.
Our goal is to send 35 patients and their families to The Painted Turtle FREE OF CHARGE. 48% of our patients come from low-income households. The additional financial pressure of living with pulmonary hypertension often prevents these families from taking trips. We would like to give them a transformative weekend, bonding with other PH families through a unique shared experience, and maybe even getting on a horse or the ropes course for the first time!
Please support UCSF Pediatric Pulmonary Hypertension and The Painted Turtle. Every dollar raised will provide a priceless therapy for our deserving children!
For more information on The Painted Turtle please visit: www.thepaintedturtle.org
Video by TJ Spencer