Helping Kids with Sensory Processing Disorders

Join us as we bring the best research and brightest minds to transform the lives of children with SPD.  
Remember to share!

HOW CAN YOU transform SPD Research?

December 02, 2017

First, if you haven't already, make a gift to our crowdfunding campaign today.

 

Second, share our crowdfunding videoTell your communities about the complex challenges that our SPD kids face every day and that TODAY we have an opportunity to make a difference. 

 

We have BIG goals in 2018. But we need YOUR help to explore the genes and proteins that add up to SPD; uncover the brain connections that cause fine motor and attention challenges; and test virtual reality with brain body training to improve brain function in children with SPD. 

 

As of today, we've raised $8,580 from 25 generous donors. Join us as we bring the best research and brightest minds together to transform the lives of children with SPD.

 

We can’t do this work without YOU. Donate now! Thank you for redefining possible for kids with SPD.

Our SNAP Crowdfunding Campaign Starts Now!

November 27, 2017

Dear Friends,

 

We have big goals at the Sensory Neurodevelopment & Autism Program (SNAP) - between now and December 31 we want to raise $100,000 to fund cutting-edge SPD research.

 

Every day I receive emails from the SPD community – including those who experience first-hand the sometimes heartbreaking impact of sensory challenges. My work is dedicated to solving the complex brain-based biology and finding better treatments for every child with SPD. 

 

That’s why today, I’m asking you to join us by making a gift. Together we can transform the lives of children with SPD. Visit our crowdfunding page at Giving.ucsf.edu/SNAP.

 

With appreciation, 

 

Elysa Marco, MD and the SNAP Team

 

P.S. Thanks to our generous donors, we’ve made remarkable progress but there is still much work to be done. This campaign is not just about raising funds for research. It is about sharing the science so that more families can find the support they need. It is about providing hope and redefining what is possible for every child with SPD.

 

Watch our crowdfunding video to learn more!

Happy Thanksgiving from the SNAP Team! Our Fall Newsletter is here.

November 21, 2017

During this season of Thanks and Giving, we want to take a moment to express our gratitude. Thank YOU for championing our mission to integrate the most innovative research with the best in patient care for every child with sensory differences.

Our Fall Newsletter is ready. [Click here] to view the latest edition of our SNAP Newsletter entitled “The Brain and The Body”.  The mission of the SNAP Newsletter is to provide you with the latest in neurodevelopment publications, clinic news, and study updates. 

Want to see more SNAP Updates? [Click here] for past issues.

Our new SNAP website is live!

November 15, 2017

The UCSF Pediatric Brain Center’s Sensory Neurodevelopment and Autism Program (SNAP) launched a new website to help share our mission, vision, and resources with the SPD community.

 

https://neurodevelopment.ucsf.edu

 

Highlights include:

  • Updated Information on Clinical Care at UCSF

  • Sensory-Friendly Events and Educational Opportunities

  • Research Studies at UCSF and Ways to Participate

Check back often as we plan to continue to update and improve the site. We welcome your feedback.

 

Thank you for being one of the compassionate who inspire and make our work possible.

 

With appreciation,

 

The SNAP Team

UCSF Pediatric Brain Center’s Sensory Neurodevelopment and Autism Program

 

P.S. Our Third Annual SPD Crowdfunding Campaign starts November 17. Please join us and help share the word!

Be one of the first 25 to receive a free UCSF Fidget Spinner!

November 04, 2017

Thank YOU for changing lives and giving hope to the 1 in 20 children who suffer from sensory-related neurodevelopmental challenges. 

 

We are gearing up for our year-end crowdfunding campaign and want to hear from you our donors. In addition to our crowdfunding campaign, we are launching an awareness effort to better spread the news of the latest research happening in SPD.

 

Please take a moment to complete our short survey http://tiny.ucsf.edu/SNAPSurvey

 

As a thank you, the first 25 responders will receive a UCSF Fidget Spinner.

 

With appreciation, 

 

Elysa Marco, MD and the UCSF Sensory Processing Team Director, UCSF Sensory Neurodevelopment & Autism Program

Making a Difference for Kids with SPD

May 25, 2017

Thanks to your generous and endless support, our recent video game attention training study has been published in PLOS One!

PLOS One allows free and immediate access to download, print, distribute and translate scientific articles, providing for the greatest access and unlimited distribution of research. Every article we publish helps get the word out about Sensory Processing Disorders.

You can read more about it here: https://www.ucsf.edu/news/2017/04/406441/video-game-promotes-better-attention-skills-some-children-sensory-processing

This work would not be possible without your help! We are always accepting donations. Every gift you make helps advance SPD research and patient care! Click here to renew your support today.

On behalf of all the children and parents who benefit from your generous contributions, thank you!

With appreciation,  Elysa Marco, MD and the UCSF Sensory Neurodevelopment and Autism Program Team

From all of us here at SNAP, we wish you a very Happy Holidays and a Happy New Year.

January 06, 2017

We recently received some very exciting news from UCSF’s News Center. Thanks to your generous and endless support, our article discussing the groundbreaking brain imaging findings for children with SPD was the most read story of 2016.  You can read more about it here: https://www.ucsf.edu/news/2016/12/405116/most-popular-science-stories-2016.

Given the tremendous success of our 2016 fundraising campaign, we plan to continue funding new studies through our crowdfunding website throughout 2017 and are always taking donations.  Thank you for your generous contributions - this work would not be possible without your help. Together we WILL make a difference. 

With appreciation,  Elysa Marco, MD and the UCSF Sensory Neurodevelopment and Autism Program Team

Update! UCSF Sensory Neurodevelopment and Autism Program

September 22, 2016

We are so grateful that our SNAP community is continuing to grow so we have decided to keep our crowdfunding site open to make it easy to contribute.

The SNAP team in conjunction with UCSF Neuroscape is striving to find better ways of assessing attention in children with neurodevelopmental disorders from all causes.  We have recently reported that using an interactive video-game like assessment tool appears to be more powerful than standard cognitive tests.

You can read more about it at :  https://www.ucsf.edu/news/2016/09/404291/video-game-more-accurate-standard-tests-iding-kids-attention-deficits-study

Thank you for your support and share our story. Together we WILL make a difference.

With appreciation,

Elysa Marco, MD; Joaquin Anguera, PhD; and the UCSF Sensory Neurodevelopment and Autism Program Team

Campaign Deadline Extended by TWO Days!!

June 28, 2016

There are only TWO days left in our campaign and we need your generous support! 

By making a giftYOU are changing lives and giving hope to the 1 in 20 children who suffer from sensory processing disorders (SPD). 

An exciting article was posted on BBC highlighting the progress our lab has made in the field of SPD research. Read to learn more! http://www.bbc.com/future/story/20160617-the-daily-pain-of-having-extreme-perception

We are grateful that friends like you have helped us raise over $57,000 so far. Every gift, no matter the size, is critical in bringing new understanding and treatments to these neurodevelopmental challenges.

Please visit our site and donate today!

Thank you for your support and for sharing our story. Together we WILL make a difference.  

With appreciation, 

Elysa Marco, MD and the UCSF Sensory Processing Team

Campaign Finish Line

June 03, 2016

There are only a few days left in our campaign. We need your generous support! 

By making a gift YOU are changing lives and giving hope to the 1 in 20 children who suffer from sensory processing disorders (SPD). 

We are grateful that friends like you have helped us raise over $50,000 so far. 

But now we are down to the wire to reach our fundraising goal of $75,000.

Every gift, no matter the size, is critical in bringing new understanding and treatments to these neurodevelopmental challenges

"Exciting research like that of Dr. Elysa Marco and colleagues makes it ever more evident that SPD is a real and unique disorder, which can be treated so that children, adolescents and adults struggling with sensory challenges can improve their daily lives."  - Carol Stock Kranowitz, author of The Out-of-Sync Child Grows Up: Coping with SPD in the Adolescent and Young Adult Years  

There is more we can do, but we can’t do it without YOU. 

Please visit our site and donate today.

Thank you for your support and share our story. Together we WILL make a difference.  

With appreciation, 

Elysa Marco, MD and the UCSF Sensory Processing Team

SENSORY NEURODEVELOPMENT AND AUTISM PROGRAM RESEARCH NEWS

May 25, 2016

We are making exciting discoveries in the field of attention and cognitive enhancement in children with SPD. Just see the picture below! We found that when children went through a 1 month cognitive training intervention, we saw enhanced neural activity in children with SPD who also had ADHD symptoms (SPD+IA). 

               Image and video hosting by TinyPic

There is more we can do, but we can’t do it without YOU. Visit our site crowdfund.ucsf.edu/1in20SPD and donate today.

Your gift will allow us to continue researching advanced intervention opportunities for the 1 in 20 children who suffer from these neurodevelopmental challenges.  As of today, we’ve raised over $48,000 towards our goal of $75,000. Remember, every gift, no matter the size, is critical in bringing new understanding and treatments to this disorder.

Thank you for your support and share our story. Together we WILL make a difference.  

DONATE TODAY!

With appreciation, 

Elysa Marco, MD and the UCSF Sensory Processing Team

Thank you! Because of you we are changing lives and giving hope.

May 16, 2016

YOU are changing lives and giving hope to the 1 in 20 children who suffer from these neurodevelopmental challenges.  As of today, we’ve raised over $47,000 towards our goal of $75,000. Every gift, no matter the size, is critical in bringing new understanding and treatments to this disorder.

We have 20 days left to reach our goal. Please help us get the word out for our SPD research and crowdfunding campaign: Tweet it, Post it and shout it from the roof tops!

Sensory Processing Disorder author, advocate, and educator, Rachel Schneider, recently shared her thoughts on our work and what it means to her:

'Through their research, the team at UCSF is changing the lives of people with Sensory Processing Disorder - including mine. For the first time, we're able to look at scans and see that the seemingly-unusual, often-debated sensory experiences we've had all our lives are, in fact, quite real. The UCSF team's findings are pivotal to our understanding of SPD as a discrete neurological condition worthy of attention. Their work is helping to not only legitimize SPD within the scientific and medical communities, but within our families and social circles, as well as in our own minds.’ 

- Rachel S. Schneider, M.A., MHC 

Author, Making Sense: A Guide to Sensory Issues

With appreciation, 

Elysa Marco, MD and the UCSF Sensory Processing Team Director, UCSF Sensory Neurodevelopment & Autism Program